Wednesday, June 15, 2011

Awareness

Williams Syndrome Awareness Week ended a few weeks ago but much has been done since then to raise awareness.

Last Friday, ABC's 20/20 did a segment on WS. It was a beautifully balanced piece and made many people aware of the condition. I saw several people on message boards comment on learning about WS. They were so moved by the piece that they were seeking out more information and volunteer opportunities. I even saw a few indicate that they think they had found the answer they had been looking for and were going to request testing for their child. How great is that? Families will now get the specialized care that they need because a little known condition was highlighted on a national news program.

If you missed the broadcast, you can find the whole episode here. There is a pretty lengthy segment on the Casey Anthony trial to start but hang in there - it's well worth it!

Also last week, 501(c)inema released their documentary on Williams syndrome, Embraceable, on DVD. It was an official selection at the Thessaloniki Documentary Festival in Greece earlier this year. I ordered my copy and have been stalking my mailbox. I can't wait to see it! You can see the trailer here: http://www.embraceablemovie.com/ and they have copies available in the store at the same site.

Williams syndrome is such a little known condition. I had never heard of it before Bean's diagnosis. So, to me, it's really exciting to see these influential media sources helping to raise awareness. The more people that know, the better! More affected individuals will receive timely diagnoses. They will receive better, specialized care and hopefully, they will be better accepted and understood in society. I can't wait to see what's next!

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If you would like to learn more about Williams syndrome, visit www.williams-syndrome.org.

2 comments:

  1. That's awesome! I have been surprised by the number of blog hits I've gotten from people who Googled "Williams Syndrome" and found my post on WS Awareness Week. Yay for awareness!

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  2. so great to start getting people educated...I thank you for all you have taught me and my family...good work sista! smiles Kim

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