Monday, September 12, 2011

Surgery Update

I apologize. This update is long overdue.

Bean's dental surgery was last Wednesday. We headed to the hospital bright and early. After checking in, we were sent to the surgical play area where Bean had a blast (in his exceedingly large hospital gown) in between consultations with the nurse, his surgeon and the anesthesiologist.




When it was time to settle down and prepare for surgery, Bean became very agitated. We decided with his anesthesiologist to give him a dose of Versed (it's like a kiddie version of Valium) to help him relax. They needed to get a 4-limb blood pressure check so the med helped immensely. After about 10 minutes, he was as snuggly and docile as ever. 


It made talking to the doctors a lot easier because he wasn't crying so hard and his vitals settled down.

Going in to the surgery, I felt great about his surgeon and even better about his anesthesiologist and his resident. They all had a decent amount of experience with and knowledge of Williams syndrome. The anesthesiologist was very thorough in his preop evaluation and he all but wiped away my concerns.

I carried Bean back to the OR and was there with him through induction. He did great. He was nice and calm and drifted off to sleep gracefully. Once he was asleep, the nurse directed me to the waiting room.

My husband, mother and I ate some breakfast (food is a great comfort item/distraction, right?) and just chatted for a bit. 

Less than an hour later, the surgeon came to let us know that Bean did great and was in recovery. They did have to remove all four teeth because they were concerned about the risk of infection causing cardiovascular problems. 

The nurses kept peeking in to the waiting room while the doctor was with us so I knew that Bean was awake - and I guessed that he was pretty agitated given his previous history with anesthesia.

I was right.

The nurses escorted Husband and I to recovery and there was Bean, a tiny beast. My poor baby hadn't even opened his eyes yet but he was swollen and crying with a puffy, red mouth. They gave him Precedex (a sedative) to help him calm down and Fentanyl and Tylenol for pain. but nothing worked. He was most upset about everything attached to him and was thrashing around. His blood pressure and pulse rates were through the roof but his oxygen sats were stable.

This lasted for about an hour until they unhooked everything. He wanted everything off so bad that he managed to pull his IV out when they were getting ready to remove it. He was still upset but a bit calmer than he was.

We moved to Recovery level three where my mother was able to join us and just had to wait for Bean to drink something and keep it down so we could leave. But Bean being Bean, he refused everything they offered. He wouldn't even nurse. He fussed off and on and only wanted his mama. Eventually, after an upset stomach, he slept for about two hours. We were beginning to get concerned that they were going to admit him if he didn't drink. Fortunately, after he woke up, he was feeling a bit better and nursed.

So, four hours after his surgery ended, we headed home.

The next couple of days were rough. Bean was very irritable, refused to eat anything other than breast milk and ran a persistent low-grade fever. We stayed in touch with his doctor but thankfully, his fever never got high enough that we had to go back in.

Aside from having a little cold, Bean is doing much better this week. He's still pretty clingy but he is eating, drinking and playing. He had his two-year well check today and did great. His ped took a look at his gums and said he is healing nicely.

Thanks so much for all your support. It means the world to my family.


Tuesday, September 6, 2011

Tomorrow is the day...


Bean's dental surgery is tomorrow morning.

I wrote about it before here and here.

We have to be at the hospital at 7:45. I'm glad it's relatively early so that he won't be too hungry and grouchy.

I'm worried, though. Well, I'm not so much worried about the actual procedure - though I am a bit bummed that he will be losing at least two (probably four) teeth. What I am concerned about is the anesthesia.

Anesthesia for anyone, especially a child, carries risks. It carries even more risks for someone with Williams syndrome because of the characteristic heart problem: supravalvular aortic stenosis (SVAS).

Bean's SVAS is mild at this point and he has done well with anesthesia in the past (pre- diagnosis), but his condition is progressive in nature and I am his mommy so I worry.

My husband and mother are both joining me at the hospital (I couldn't pay my mother to stay away) and my husband's parents will be spending the day with Baby J and taking him to preschool. I am so excited that they will get to see him in that environment and Baby J can't wait to show them his school!


I will post any (brief) updates on my twitter (@babyjandbean - you can link to it here and no, you don't need a twitter account) and my facebook blog page: www.facebook.com/babyjandbean because the two update each other automagically and I can easily post from my phone.

Thank you for keeping Bean and my family in your thoughts.

Good night - here's to me hopefully getting at least a little bit of sleep...

Monday, September 5, 2011

Freezing Time


Baby J started (back to) preschool on Friday. 

He had a hard time falling asleep the night before so we had to wake him up in the morning. As soon as he saw me, his face lit up because he was so excited.

It was one of the smoothest mornings we have had with him in a long time. He got up easily, ate his breakfast (french toast) without a word of dissent (highly unusual), and quickly dressed and put on his Thomas the Train backback. And yes, he insisted on wearing his Toy Story/light up, character shoes.


We even left the house on time.

Baby J was so excited when we got to the school. He started playing right away in the sandbox and then with some trucks.



He was so happy about playing with old friends (and some new ones) that he barely noticed when it was time for me to leave. I got a quick kiss and a "whatever mom" look and he was off...

When I went to pick him up, he was sitting nicely (quietly!) in circle time and greeted me with a ginormous smile and hug.

I'm so proud of him and I'm so happy that we found his school/program last year. He's come so far since last year in group play dynamics, transitions and quiet times. The teachers are fantastic and he even has one of the same ones (his favorite teacher!) that he did in the toddler class. He also has quite a few friends in class this year that were in his toddler class last year. The only big difference is that he's going three days a week instead of one and the class time is slightly longer. 

He heads back this Wednesday and he can't stop talking about it!

My little boy isn't so little now. He's growing up so fast, I can hardly stand it. He's so sweet and amazing and smart and funny (and "spirited" sometimes, too). Can I just freeze time now and keep him like this forever?!?!



Thursday, September 1, 2011

I'll never...

How many times have I said that? Too many to count.

Just about two months ago, I wrote a similar post about eating my words when we bought our mini van.

So anyway...

Baby J needed back-to-school shoes. I like shoes. A lot. But I really don't like character shoes for kids or shoes that light up. So, I ordered a really cute pair of Simple shoes from Amazon. They were on sale. I got free shipping and they are really stinking cute. They are sneakers but can double as dress-up. They have a funkified saddle-shoe vibe. You can see them here.

The dude, however, was NOT as excited about them as I was. He has been living in Crocs this summer and prefers to wear them year round but I digress...

Because these shoes were a wee bit on the pricey side for kid shoes ($30) and because I want him to be able to wear them for dress, I decided to take him to get a pair of cheapy sneakers for rainy, yucky days on the playground. So, off to Target we went...

And what did we come home with?



Yep. You guessed it. Character shoes that light up.

And they are worth every penny. He is IN LOVE with these shoes. He's been putting them on the minute he wakes up, stomps around the house all day long to make them light up, and isn't taking them off until bed time. He even asked me if he could sleep in them. In case you are interested, the answer was, "no."

I have a feeling I know what Baby J will be wearing on his feet tomorrow morning for his first day of school and it won't be the super cute, slightly pricey Simple shoes that Mommy loves.

You would think I would have learned by now to stop saying, "I'll never..."